FAQ
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Is there research oversight for this project?
The project received exempt status from the Stanford Institutional Review Board.
Is this an international study?
Yes. We invite participation from patients and healthcare professionals in all countries.
Will surveys be translated into other languages?
We invite international collaboration with survey translation and distribution. Please email Beth Darnall, PhD at bdarnall@stanford.edu.
What's the timeframe for this project?
We aim to have the first surveys collected and analyzed in summer 2020. Final surveys will be distributed in August 2020.
Who is involved in this project?
Collaborating International Organizations
- Global Alliance of Pain Patient Advocates (GAPPA), a task force of the International Association for the Study of Pain (IASP)
- World Patients Alliance
Collaborating National and Regional Organizations
-
PainAustralia (Australia)
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Centre for Pediatric Pain Research (Canada)
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Solutions for Kids in Pain Network (Canada)
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American Chronic Pain Association (USA)
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American Society of Anesthesiologists (USA)
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Chronic Pain Research Alliance (USA)
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PainUSA (USA)
Individual Scientific Collaborators
Name | Country |
Dr. Peter O'Sullivan | Australia |
Dr. Fiona Blyth | Australia |
Dr. Claire Ashton James | Australia |
Dr. Michael Nicholas | Australia |
Dr. Geert Crombez | Belgium |
Dr. Johan Vlaeyen | Belgium |
Dr. Christine Chambers | Canada |
Dr. Fiona Campbell | Canada |
Dr. Fiona Webster | Canada |
Dr. Mick Sullivan | Canada |
Dr. Devdeep Ahuja | India |
Dr. Zu Osman | Malaysia |
Dr. Hanne Wurtzen | Sweden |
Dr. Su-Yin Yang | Singapore |
Dr. Lance McCracken | Sweden |
Dr. Ming-Chang Kao | Taiwan |
Dr. Jonathan Hill | UK |
Dr. Emma Fisher | UK |
Dr. Sandy Hilton | USA |
Dr. Franke Keefe | USA |
Dr. Terri Lewis | USA |
Dr. Amanda Feinstein | USA |
Dr. Judy Turner | USA |
Dr. Sean Mackey | USA |
Dr. Kathleen Sluka | USA |
Dr. Sophia You | USA |
Dr. Maisa Ziadni | USA |
Dr. Karon Cook | USA |
Dr. Lynn Martire | USA |
Dr. David Talavera | USA |
Dr. Dagmar Amtmann | USA |
Collaborating Patient Representatives:
Name | Country |
Carol Bennett | Australia |
Dawn Richards | Canada |
Isabel Jordan | Canada |
Pete Moore | UK |
Felicia Cox, FRCN, MSc, RN | UK |
Penney Cowan | USA |
Andrea Anderson | USA |
Amy Partridge | USA |
Rose Bigham | USA |
Lelena Peacock | USA |
Anne Fuqua, BSN | USA |
Christin Veasley | USA |