Welcome!

This is a patient-centered project being led by a group of committed pain researchers, patients, patient advocates, and healthcare professionals.

We aim to understand the perspective of patients, researchers and healthcare professionals with regard to the term “pain catastrophizing.” We will be collecting and collating the information we receive from your responses to help us understand whether it’s time for a change in the use of this term—and to possibly create new terminology that is compassionate, patient-centered, and more considerate for use in the medical community.

Please consider completing one of our anonymous surveys. We have one survey for healthcare professionals or researchers and one for patients. You do not need to have pain currently to complete the patient survey – we are seeking opinions of people who have experienced pain in the past or have current ongoing pain. Your responses will help us understand how to improve language and patient-centered communication in medical settings. We are inviting participation from people in all countries.